While we talk about the anguish that patients with chronic illnesses experience, what is often overlooked is the impact that this condition can have on caregivers: the family or friends who remain as pillars of strength and support in these difficult times. Caring for a loved one with an illness may require a caregiver to make changes to their own personal or professional routines. Along with the worry that can accompany such diagnoses, caregivers may also experience emotions such as anger, frustration, sadness, loneliness, or guilt. This caregiver burden becomes heavier as people neglect their own emotional and physical well-being to care for another’s illness for extended periods of time. However, what we must remember is that the health and well-being of the caregiver is also essential to the well-being of the patient.
1) Be compassionate with yourself: Having negative feelings like anger or frustration is a normal part of caring for someone. This does not make one a bad caregiver. Accept these feelings as part of the journey and be compassionate with yourself.
2) Take time to do the things you love to do: It’s easy to get lost in caring for others, and many times one can feel guilty doing things for oneself when a loved one is in distress. However, remember that it is important to take time to take care of yourself, so that you can also provide that care to others.
3) Take care of your physical health: Sleep and appetite are often the first to be compromised when caring for a patient. Make sure you eat regular, healthy meals and get plenty of rest to prepare for whatever the day brings.
4) Acknowledge your efforts: There are many things that are not in our control when it comes to physical health. Your loved one’s condition may worsen over time, despite your best efforts. It is important to accept limitations and set realistic expectations of oneself. Take a moment to appreciate the efforts you are making and acknowledge the meaning and purpose it brings.
5) Seek help: It is not always possible for one person to manage their own affairs and at the same time take care of all the needs of another. This is where friends, family, and the community can help. Asking for help is not a sign of weakness or defeat. Openly share your feelings and needs – having some support can give you a break to recharge.
6) Join a support group: People in your immediate circle may not always be able to understand or empathize with the challenges you are experiencing. Sometimes talking to others who are in the midst of a similar situation can provide much-needed support. If possible, join a support group, which will give you the opportunity to share your experiences, learn from others who have been on this journey, and build meaningful bonds to support each other during these difficult times.
7) Make a list of your goals: Break big tasks into smaller steps and make a daily routine with assigned tasks. And don’t commit to things that are beyond your capacity.
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