Trouble of CJI Chandrachud’s daughter: The Chief Justice of India, namely CJI Chandrachud, has entered into discussion these days. Recently, Chandrachud spoke about this issue by revealing the congenital and rare disease of his two daughters. CJI said his daughter is suffering from a disorder called nemaline myopathy. It is a congenital disease for which there is no cure. Let us know what this disease is and what its symptoms are.
What is nemaline myopathy?
Health experts say that nemaline myopathy is a congenital disease in which muscle-related problems occur. In this disease, muscle proteins begin to be destroyed. This disease severely affects the muscles and it becomes difficult for the patient to move.
This condition affects the muscles around the neck and jaw, causing difficulty breathing, swallowing, eating, and even speaking. Let us tell you that at present there is no cure for this disease and this disease is so rare that it affects only one in fifty thousand people.
Symptoms and treatment of nemaline myopathy
This disorder is congenital and develops as the child grows. When children fall prey to this disease, their muscles start to weaken. He has difficulty walking. The child feels a lot of pain when speaking. Sometimes, due to weakening of muscles, even the shape of the child’s face changes.
When muscles weaken, joints in the body begin to tighten, causing the child to feel pain when moving. He also begins to have difficulty getting up and sitting down. Talking about treatment, no cure is possible for this disease. But with the help of physiotherapy, its symptoms can be controlled. When the condition worsens to the point that the patient is no longer able to breathe, then ventilation is necessary. Patients are also helped through speech therapy.
Disclaimer: Some information given in news is based on media reports. Before implementing any suggestion, you should consult the relevant expert.
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